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Thursday, May 31, 2012

Updates...

It's the end of the month...time for updates!

Luke is so TALL!  Every time I hug the little guy, I swear he grows another inch!  During May he returned back to occupational therapy at Legacy Salmon Creek.  It is amazing how a month back on track has effected him in such a positive way.  He is cooperating more, sensory behaviors have lessened to some degree, he is wearing his compression shirt and is tolerating 15 minutes of iLs (our listening program) a day.  This a HUGE improvement from the boy who refused and threw a BIG fit if I put the headphones on him.  The month also brought an intake for counseling to help me and Luke at home.  He played several awesome baseball games, and he took a field trip to Fort Vancouver.  Luke is getting ready to earn his green belt in karate.  His eyes are stable for now.  We have another appointment at Casey Eye at the end of June.  The doctor is planning on giving him another visual field test sometime this summer. 

Grace is doing very well.  She is still enjoying her pierced ears, although I have to admit she loves to go through earrings. :)  She has been getting ready for her big ballet showcase in June.  Her dance class is tapping to the song "It takes two."  It should be really cute!  We just had her dance pictures taken yesterday.  Nothing like 12 girls in red lipstick :)  She is doing well in school and despite setbacks in reading she has been catching up to grade level.  I attended her 1st grade music performance in May and watched her sing her little heart out and twirled her ribbon.  She shinned!  Grace is anxiously awaiting the return of her speech therapist (who has been out on maternity leave) so she can attend therapy at the same time as Luke. 


 This little pixie has been acting "2"!!! This past month she has mastered the art of screaming at the top of her lungs when she doesn't get her way, throws her self on the floor and yells "it's not fair", and has eaten more fruit snacks than I can count.  She is picking up words so quickly and communicating with me all the time.  Her favorite activity this month so far has been going to the "mailbox" so she can open the box with the key.  This ususally goes on until I drag her screaming out of the post office. 

This month brought me a lot of appointments for the kids and myself.  There was not one week that did not include at least one medical and one therapy appointment.

I found out recently that Luke's teacher (whom I adore) will not be looping up to 4th grade (like everyone had been telling me she would be).  I was crushed and I cried.  I actually began thinking that this summer I could relax and not worry about what the next school year would hold for Luke.  I could enter a year and have the teacher know my son and my son know the teacher.  There would be a relationship established and the teaching and learning styles known.  The thought of having to introduce another teacher to Luke and begin the fight all over for his needs next fall is a daunting task for me.  I was looking forward to having a break from the "advocational" role this next school year, but it's not to be.  Sometimes the fighting is non-stop.  Today I just have a bad attitude and it doesn't seem fair.  I know life isn't fair, but today I just want it to be.

This has led to me having trouble sleeping.  I have a difficult time falling asleep when Mark is gone.  My sleeping patterns are way off.  He has been gone probably at least half the nights in the last month.  It gets lonely a lot.  I try and keep my kids as the sole focus and count my blessings to keep a positive attitude, but I must admit I don't always do this.  I am certain I yelled at the kids when the windows were open and the neighbors heard my sin.  Sometimes moms just yell.  I hate that.  I read that when you yell it only shows that "no one is in control."  I could use prayers and support.

Mark's activities consist of work, president of the deacon board at church, helping our neighbor build a room in their garage, hiking Dog Mountain, poker night.  I don't know how he does it.  But I am glad he is a better time manager than I.  I am working on it.  When everything boils down...I.just.miss.him.alot!!!

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