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Sunday, January 13, 2013


Luke had an eye appointment this past week.  We have been through so many of these appointments I have since "let go" of the worry that occupied my mind preceding each Casey Eye appointment.  Previously I spent a year gripped with worry and fear over "what exactly is wrong with Luke's eyes."  I wanted an answer, a definite diagnosis, and a three step plan on we were going to fix it.  None of my wishes ever came to be.  The only answer given was Luke has "childhood onset glaucoma".  There was no explanation of why he was losing his sight so rapidly. Test after test would come back with no explanation.  Meanwhile, I would become more anxious and fearful. I was "willing" there to be an answer, anything concrete that I could hold on to, google and fix. No answer would come.  In the last 18 months, I have learned to exist with an unknown. 

This past week he had ANOTHER series of tests.  Eye pressures, digital photography, dilation of eyes, visual fields...the whole gamut.  The doctor was so pleased with the results of all said tests and claimed Luke's successful appointment a "late Christmas present" in her Australian accent.  In the last 18 months, Luke has NOT lost any more vision!!!  His eyes remain STABLE!  Victory for this mama.  An everyday MIRACLE nonetheless.  Luke is a RARE case and therefore despite the INCREDIBLE news, will continue to be followed VERY closely.  More eye drops, more appointments, more eye pressures, more of the same course we are on.  But I walk on, with this victory under my belt, a smile on my face and the realization that I am holding hands with a MIRACLE!

1 comment:

Sharla said...

That is awesome news! You must be so relieved to at least have his vision not have worsened this time.

I hope next appointment's outcome is equally as promising!

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