Week 4 @ The Dahlhouse: Meetings & Projects & Trucks

Week 4 at the Dahlhouse was hard week.  Some weeks just are.  So much going on and trying to hold down the house while Mark is busy working (traveling) can take it's toll after a while.  My Monday was insane and there were moments where I wasn't sure if we were all going to make it though.  I found this quote that is so true.  On Monday I was a little bit of everything all rolled into one mom.  

Monday I had a big meeting for Luke at his school.  It wasn't because anything was going wrong, but because sometimes you just are hoping things can be better, and hopeful everyone can be on the same page.  No matter how many of these meetings I sit in over the years, they are never easy.  Even when you are all on the same side.  A lot of meetings feel like "us vs. them."  However, I am happy that this meeting was...them with us...working with us...to make sure everyone was up to date on Luke.  Monday, Mark was in Pasco, so I was flying solo on this meeting.  Mark is my rock and it's difficult to go to these meetings without him.  He is incredible source of support.  Luke's tutor; however, was an amazing support and additional advocate for Luke.  I was so thankful she was there.  I did well...despite choking back some tears at times.  I surely didn't want to cry, although I easily could have.  Even though I know all the truth about Luke and his special needs...it is never easy to hear others talk about it.  I keep going...one foot in front of the other.  Advocate...advocate...advocate his worth.

Birthday prep is underway during this week at the Dahlhouse.  I can hardly believe this little guy is going to turn two in just a few weeks.  Seriously...where has the time gone.  It has flown by.  I am really enjoying this stage.  He is funny, opinionated, strong willed, sweet, loveable, has his own personality and likes...he is joy!

Matthew LOVES his trucks!  I am so excited he is getting his two year pictures taken this next week with our favorite photographer: Brienne Kristen Photography.  And the theme will be....you guessed it "TRUCKS!"  I was looking through the newborn pictures she took of Man Cub (2 years ago) and can hardly believe he was that small.   

Projects were accomplished this week.  Luke completed his Revolutionary War Timeline.  It was a major class project for Humanities; but Luke did an amazing job.  I am very proud.  He made it out of sheetrock.  I am also excited that he will be getting to see these places when he goes on the DC Trip.

This is what was happening when I was working with Luke and not paying attention to Man Cub's every move.  Goldfish, board games and toys!

His favorite toys are anything with wheels!  He will say "choo-choo," "car," and "bus".

Grace had an ortho appointment this week.  Braces are getting closer and closer for her.  She is excited to get her teeth her fixed.  I know it will give her more confidence.  

I found this little gem when I was cleaning out the diaper bag.  Seriously!  This girl!!!  I LOVE her!!! It's glamor shots at Chuck E Cheese.

 Brother bonding.

Mark and I went to the Portland Auto Show this week and Man Cub tagged along.  Vehicles are another one of Matthew's love languages.  He LOVED getting in and out of all the cars.  He walked around saying "beep-beep".  People thought he was the cutest!   I agree.

We call this the "silent fit".  Matthew protests when he doesn't like something.  He doesn't yell or cry.  Just lays there and makes faces at you.  In this example we made him get out of the car and he didn't like that idea.  He went and laid down in the middle of the Toyota display.  Awesome.  We are obviously winning at this parenting thing.

I love this picture...we are in my dream car.  Someday!  It is a Land Rover Range Rover.  It was pretty much the best.  I am grateful for a busy, crazy, loud life, and to get to do the job of advocate for my kids.

Discouraged...but still fighting

Sometimes when it rains....it pours.  This was true this past week.  The week started typical...Monday morning errands and such.  What the rest of the week would entail, would be absolutely unbelievable.  Through the process of researching Luke's most current IEP, I discovered that the school district was not providing services listed on Luke's IEP.  He had been missing 45 minutes of services per week.  Not only was this a HUGE oversight by the school district, it is illegal.  Luke is entitled to a free and appropriate education and they failed to provide that.  The director of special education is involved now and I am seeking restitution for the missed services and service time for Luke. 

This situation leaves such a bad tasted in my mouth.  I entrusted my son into their care.  I even spent time talking with the staff at the school before I enrolled him to let them know my concerns, thoughts and apprehensions.  They broke that trust and now I feel that I have to check and double check just to make sure Luke is getting his services and they are doing their jobs. I just always feel like I am fighting and fighting and fighting. If I let my guard down for one minute, I feel that something horrible might happen.

This situation has caused me to question everything.  Education, special education, IEP's, what really is important in the education of a child.  I am left feeling empty, confused and sad.  It even makes me wonder why we have special education when staff doesn't care to read or follow the IEP (Individualized Education Plan).  It is absolutely disappointing.  I think was is the most frustrating for me is that the school district and teachers were cheating my son, Luke, out of what was legally and rightfully his.  Really!!! They are messing with my baby.  He has been through so much, and to now to have those that are supposed to be protecting, educating him and helping him, not even follow through makes this mama MAD (to say the very least).

On the home front...I am really missing Mark.  He is gone a lot and I am left to ease the feelings and actions of 3 little people who miss him dearly.  When Mark was home this week, it seemed everything and everybody was just pulling him away from spending a few minutes together.  His phone would ring (a friend), his phone would ring (friend from work)...van had a leaky tire, the neighbor needed his help, the neighbor needed advice, the church needed him to go down to the bank to sign some papers for something, etc, etc...

To top it off, the one night we had together with him home this week Bella got sick.  Of course, Friday night, she would not be feeling well.  She wouldn't go to sleep and had difficulty staying asleep. Up at 11pm, up at 2am, up for the day at 4am.  I knew right away she had an ear infection.  Got up Saturday (well waited for Urgent Care to open) and took her to the doctor.  DOUBLE EAR INFECTIONS.  The doctor said her ears were bright red and bulging.  This is her 4th ear infection in less than a year.  I think we have ear tubes in her future.  It might be time to call Dr. Wilson.  Ughh.  My poor baby.  Mark's train was called when Bella and I were still at the doctors, so we missed spending time with him again.  Thankful for both Grandma and Mimi, who stopped by today. 

Tonight I was supposed to get to go to a girl's night...a night off.  I had a babysitter and was really looking forward to grown-up conversation and a time to vent, laugh and not have responsibility for a couple of hours.  But..due to the ear infections it didn't happen.  I really needed that break too.  Oh well..Bella needs me and I am where I am supposed to be...but I can feel disappointed.  Another time.

So that is my fantastic week in a nutshell.  I am believing next week will be better.  Despite all the difficulties I am thankful for so many things...a home, my children, my husband, a place where I can access medical care for my child on a Saturday, friends that care and grandmas and Mimi's that stop in and help out.  Tonight I am thankful to the doctor who prescribed numbing ear drops for my baby, so that for the first time in 4 nights I will be able to get some sleep in my bed and not sitting in a rocking chair.

Evaluations

Evaluations....what are they really? A snapshot...an opinion...a thought...or are they an assessment given to summarize where a child is at, at a given moment? I am in the stage of waiting for all of these evaluations to come back on Luke. April 12th will be our day... mental note...need babysitter...mental note...need to take the day off work....the day we find out about Luke's evaluations. Over these last 35 days, Luke has been given all different types of evaluations. Some of them I am familiar with...some I am not. These data devices help us to plot out where Luke is on the Bell curve. We are looking to see how many standard deviations Luke falls from the norm. Anything over -1.5 standard deviations from the norm is a cause for a delay and needs to be addressed. They will have looked at and evaluated Luke's social/emotional/behavioral skills, cognitive skills, fine motor skills, academics, occupational therapy, sensory, speech and language, and medical history. I located, picked up and delivered all of Luke's medical records as requested. Glad I can check that off my list. I just keep praying and believing that all my hard work and effort will make a difference on his IEP (Individualized Education Program).

In other NEWS....I did 12 loads of laundry today. 7 loads I did at once at a laundromat. I have found myself so far behind that I just wanted it all finished. So I loaded up, and went washing. It was kind of fun.

Grace is getting an award in school. Bella will turn 1 next week and Luke will "officially" turn 8 next week. I am looking forward to Spring Break and planning to take the kids to some type of kid museum somewhere.