Friday, August 31, 2012

Delayed

"Delayed"...the word is heavy on my heart as my mind tries to process the latest news regarding our 3rd little one.  Even though I have existed in this "world" (special needs) since 2004, I feel as though I am in unfamiliar territory, almost a newbie again.  True...the state of Washington recognizes me as a "special education teacher".  Yes I am trained and capable to meet the educational, emotional and physical needs of special little people, but when I look at her it is with a "mama's" heart and not a "teacher's".  I step out of the "driver's seat" so to speak, and into the "parent role".  And.My.Heart.Breaks! 

My Bella has ALWAYS had a very SPECIAL personality.  From the minute she was born we have been EXTREMELY bonded. Perhaps it was the way she was created, perhaps I held on so much because I had waited so long to be pregnant and have a baby!  Perhaps I held on so much because I felt that in some way she was a connection to my 3 babies that I miscarried.  I would hold her as an infant and wonder if my others would have looked like her, if they would have smelled like her and made precious nosies like her.  I held on so much that I really didn't share her with anyone else.  I look back now and think I made a mistake holding on so much.  She doesn't willingly even go to her Mimi and Papa or Grandma and Grandpa.  And.it.breaks.my.heart!  And theirs too.  Forget strangers or saying hi to other adults and kids.  She just buries her face in my shoulder or gives you the "stink eye." 

I thought Miss B would outgrow it, but last month I began to notice some red flags.  We navigated through all the right channels.  Phone calls, screenings, and then evaluation.  Final results....social delay, adaptive delay, sensory processing disorder.  Her "team" feels that most all of the issues are interrelated with the sensory disorder.  So Bella B will join her brother on the occupational therapy schedule.  Although they will go to separate places.  When she gets closer to 3, we will see if she will go to the special education preschool that Luke went too.  Oh...goodness...the thought scares me. 

My brain is trying to process all this information.  What went wrong?  Did I do something?  Is there something I could have done?  What now?  My heart hurts for the fact she has had these delays and I haven't done anything about it.  But now that I know, I feel like more "grace" is given to her and patience knowing that these are her set of "special needs." 

I have cried A LOT of tears this week!  Transitions are difficult for me too.  I started back to work this week.  It has been going well, but I am adjusting to a new schedule.  And so is Bella.  Then I was given the results of her eval, and the kids met their new teachers...well sort of (another story).  Grace's new teacher was sick and not at the open house.  It was not the best situation for a girl that is very anxious about going back to school.  Nothing had been done to her classroom.  I tried to highlight the positives, but there were boxes laying around every where in the classroom.  Eeek.  I was disappointed.  So was she.


Despite the crazies in our life, we press onward, because really there is not much more to do.  Move forward, walk one foot in front of the other.  Somehow we will find our new "normal".  We will address what needs to be addressed and make sure each little person here in the DAHL house has their needs met. 

I must admit the task feels a bit daunting. Three kids, all special needs now. Who would have predicted that? I feel at times...am I capable of this? Little me...with a 7 special needs students and now 3 special needs kids. But...I trust that God will guide me, give me strength and patience. I know I am a mama to those kiddos for a reason, and a teacher to those students for a reason.
Please pray that WE would find PEACE in all these transitions.

Pray for STRENGTH as Mark and I together parent these little ones.

Pray for HEALING, for all my kids (Luke's eyes, Grace's anxiety, and Bella's physical delays) because I know OUR GOD is ABLE. 



Carissa :)

Friday, August 24, 2012

Summer Is....

The summer has seem to have flown by, like it usually does.  We have been incredibly blessed this year to take a few trips and visit with family.  Today is a special day because it is my dad's birthday.  He would have been 61 years old today.  I miss him so much it hurts!  He was a wonderful father and my greatest wish is that he could have met his grand kids.  Stupid cancer!  I hold on to the promise that one day we will all be reunited again!  My parents gave my brother and I many wonderful summers and I strive to pass on that gift to my children.
 
Summer is trips to the park with dad! Mark spent as much time with us as he could, despite his busy schedule.  He loves being a dad and it shows!  He took the kids to the park several times.  Oh how they love to play with him! 
 Summer is hanging around on the monkey bars!
 
Summer is relaxing in the grass.
 
 Summer is a ballet showcase!

 Summer is bowling with Auntie Katie!

Summer is Oak's Park with Uncle D!
 
 Summer is silly faces, silly kids and BBQ's with 14 other kiddos!

 Summer is splashing in the pool!

Summer is reuniting with family.
 
 Summer is exploration in matching dresses!

 Summer is for visiting with your sisters!

 Summer is a trip to California!

Summer is the Griffith Observatory and the Hollywood sign!
 
 Summer is Disneyland!!!

 Summer is brothers and sisters!

 Summer is the new Cars Land!

Summer is for riding roller coasters for the first time!
 
 Summer is for bonding with Auntie Katie!

 Summer is for picture taking and memory making!

Summer is for 3D glasses and Toy Story Mania!
 
 Summer is for sister LOVE!

 Summer is for kayaking with your friends!

Summer is for camping with good friends and roasting your first hot dog and smores! 

As summer comes to a close, I am thankful for the experiences, memory making and time spent together.  It is now time to look toward the fall season, schedules and school to make new memories and have new experiences. 

Praying your fall season is full of love and memories,
Carissa

Saturday, August 18, 2012

Getting Ready for School

I decided to write this post in response to Kate's question regarding "how do you help children with special needs get ready for school?"  I shared previously under "Luke's needs" and shared about some of my difficulties, but decided to share how we actually get the school year going. You can find Kate's blog by looking for the "Lucy" button on the right hand side of my blog.  If you haven't taken time to read about Lucy I encourage you too.  She is an amazing little girl!

So...getting my crew ready for school.  School has always been a "hot topic" for me.  Making the right decision about WHERE the kids go to school has never been easy for me.  A year and a half ago we switched from private to public school, after realizing I needed more help with Luke's needs. 


Luke has various special needs including childhood onset glaucoma, ADHD, Tourette Syndrome and visual, auditory and visual processing disorders.  Miss Grace has difficulties with speech and reading.  And Bella...well on Friday she has an evaluation with Infant/Toddler Early Intervention to see if she has developmental delays.  This has come as a shock to me and I have had a difficult time wrapping my mind around the fact that Bella may need therapy too.  I do know that whatever may come of the evaluation that God will give me the strength to walk the journey. 


The process really begins in the summer when the nurse sends home a letter outlining Luke's medical conditions and asking if anything has changed.  I make sure to fill it out and return it.  I revisit his IEP and make certain that I am happy with the goals and objectives.  I take him to Casey Eye OHSU to have his eyes checked, and to the regular eye doctor to make sure his prescription doesn't need altering.  I have also taken him to his primary for a medication check.  Lots of appointments :)  I order some more compression shirts from Fun and Function.  They help regulate his sensory systems.  I go to Target to find the only size 10 jeans that Luke can button (he needs snaps which is nearly impossible to find).  Fine motor skills are a struggle.  I reorganize his therapies (OT and counseling) so that he doesn't have to miss school, or as little school as possible. 

When school begins, I will make sure to find out what times his services are being given to him, that he is facing the white board straight on (due to his loss of peripheral vision).  I will also make certain that his accommodations and modifications are available to him during the school day and that his "school" glasses are ready for the year. 

For Grace I will make sure to be in communication with the teacher regarding her reading level and make sure her speech is not a concern in the classroom. 

This year I will return to work as a half-time special education preschool teacher.  So a lot of time and planning have already gone into getting ready for the 7 little special needs preschool students I will have under my wings for the next school year.  It is an interesting place to be where you are the mother to special needs kids and a teacher to special needs kids.  I am so blessed with this new job and look forward to the journey that God has set before me.  I am TRUSTING HIM to grant the kids with exceptional teachers, and give me the STRENGTH and ABILITY to be the MOM my kids need to be and the TEACHER my students need me to be. 

Thanks for reading!  Be Blessed!
Carissa Dahl


Tuesday, August 7, 2012

Finding Balance

It has taken nearly a week to recover from our vacation to Southern California (Pictures and a post on that to come).  48 hours after returning home, we went camping for 3 days. Yes the word CRAZY comes to mind!  But today...I wanted to touch on a subject that has been on my mind for the last few days.

Finding Balance...I have the tendency to get consumed by something and then throw myself into it.  This is mainly true of my children, especially Luke and his special needs.  I am always on the look out for the next thing, resource, help, intervention, supplement, food, exercise...anything to make his life BETTER.  Lately though I just feel bogged down.  No matter how hard I try.  I.CAN'T.KEEP.UP!  It leaves me feeling like a failure.  Let me explain a little...

The last couple of years with Luke could be somewhat titled as chapters in a book.  Two years ago...the title would have read Getting Diagnosed.  The title this year could read Nutrition and Special Needs.  Looking back.... the "getting diagnosed" part was relatively simple compared to this new "chapter" I have been trying to master.  Most of my research this year (and yes... I am that geek that stays up into the wee hours of the night googling and reading books)  has focused on "the brain gut connection".  When I saw Luke's primary care, whom I really like, last year...I asked about diet and ADHD/Tourettes/Etc.  The response given was that diet does NOT make a difference.  That didn't sit right with me.  I took the information and decided to see what I could come up with.  After all...I have learned that YOU are the one in the driver's seat when it comes to health care (and your children's health care).  It is true that there are not any BIG scientific studies and research that link a specific diet with helping ALL kids with ADHD.  But....I knew of too many people/friends and children where diet DID make a difference with their special needs.  I couldn't just accept a generalized statement as the be all end all of truth.  I am sure by now most all of us have heard of the "gluten-free" diet.  It has been known to make a HUGE difference in children with Autism and ADHD.  So I dug deeper.


Let me add...in my researching of "the brain gut connection" I did NOT go into it looking for a CURE.  I was simply looking for another TOOL to help make life a little better, a little easier for Mr. Luke.  My research turned up case after case of how removing  food dyes, artificial colors, and artificial ingredients were making a difference in the lives of these special children.  I learned how our food dyes...you know RED 40 (in things like yogurt and juice) and Yellow 5 (in almost every pickle jar) were made from a petroleum base...you know..the stuff we pump into our cars to make them go.  I started thinking how that really can't be HEALTHY for ANYONE!  By law in the UK, they are required to put on food labels that contain any artificial food dye a "warning label".  My eyes began to open...and I began reading labels!  I also bought the Feingold Program for Luke.  I read it.  I started reading about Naturopathic medicine.  Now..this was a BIG jump for me, as I have always been more of a traditionalist.  But...for my kids...I will do just about anything and try anything.  So after two days of seeing if the insurance would cover it...Luke and I went on an adventure to a naturopathic doctor and boy..oh..boy...was it a GREAT experience!  She was amazing!  I LOVED going to a doctor's office in a HOUSE!  Incredible.  She began to put more of the pieces together regarding a low-sugar diet, protein, and supplements.  Also just a great person to ask questions too.  I also spent the 145.00 dollars to have Luke tested for 99 different food allergies.  We go for our follow up this week to find out.  She confirmed what my research had shown me....there IS a "brain gut connection".




So...this brings me to the title of my blog regarding "Finding Balance".  This is where I struggle. The mommy in me wants to give Luke and Grace and Bella everything that would make life better and their health better.  But finances are an issue. Supplements are not cheap...with the supplements the kids are on, with the supplements that the doctor wants me on, plus trying to buy everything organic and healthy....how does one find balance.  I find myself feeling guilty if I walk into Winco and buy something non-organic.  But...we just don't have the money to go around (with the other therapies, interventions, etc).  I used to get so many good deals couponing, but most of the things for coupons are things we shouldn't be eating.  I miss couponing and saving money, but I want us all to be healthy.  How do I find a balance?How does one afford 150 dollars in supplements a month?  I feel guilty if I spend 80 dollars on one bag of groceries at Whole Foods.  I feel guilty if I shop cheap at Win-Co.   How does one find balance?  How do I make peace with food?  Please leave me a comment if you have advice? Would love to hear any thoughts and insights!

Saturday, July 21, 2012

The GIRLS (A glimpse into my past)

When we were in Yakima, we had a chance to visit with Luke's biological sisters J and A.  It had been just about a year since the last time they saw each other.  I always feel so privileged to watch the reunion between them, as if to thank them for letting me witness their "moment".  
If you have ever had any question or doubt about whether biological siblings will remember anything about each other if they are separated, I can assure you THEY DO!  It is as if, in an instant there is a bond between the three of them that cannot be undone.  I always watch in amazement as they "assume" their "birth order" roles.  Which Luke being the "oldest" in our home, automatically becomes the "youngest" in the sibling group.  And what is even more AMAZING is he lets them tell him what to do!  (That NEVER happens in our home.)  The bond between them is sweet and beautiful.  I love to watch them love each other.  And while my heart breaks that the visits don't last forever, I am thankful for their family who recognizes and understands the importance of seeing each other.  

The "girls" hold a VERY special place in my heart.  They were MY babies for a few months.  I rocked, and held and hugged and kissed and cared for them.  I turned a bedroom into a princess castle.  A, had all the matching purple furniture and J, had all the matching pink furniture.  When A and J and Luke lived with us all together at the same time, I had a 3 year old, 2 year old and 1 year old all with VERY special needs.   I can remember the schedule like it was yesterday...A had special preschool 4 days a week, J had special preschool 2 days a week, plus physical therapy and speech therapy, Luke had physical therapy, and lots of doctors appointments.  All three had parent visits throughout the week, and all three had ear tubes, all three in diapers.  Both A and J were being looked at by a developmental pediatrician.  They would cling onto my legs, begging to be held, crying, saying "up mommy".  I didn't have enough arms.  

(I will always and forever remember J and A this way. This is how I see them in my mind!)

Ultimately we decided (DCFS and Mark and I) that they needed to separate the children so that their needs could be met.  Some would argue that we did the wrong thing.  Truthfully, seeing the 3 of them together now, I feel pains of guilt knowing that I could have changed their destiny.  I also am 33 years old now and have trained as a special educator.  I was 24 at the time the 3 kiddos lived in our home.  I have matured a bit :) 

I am the one now that gets to answer the tough questions like "why don't I live with my sisters?"  and help him work through the crying when he misses them.  With adoption, you can never erase the past, wipe it clean, make a fresh start.  We can look at the past, learn from it, and move forward.  As much as this mama would like to erase the hurt, and tears, and medical issues to make everything wonderful for my baby boy....I.CAN'T.  So I tell him the TRUTH, that all 3 of them had special needs, and all the adults that cared for him in his life decided that we all needed more help.  That is when they found a forever home for A and J.  A nice couple that didn't have any children.  The GIRLS became everything to them!  And another family was made!  
All 3 kiddos were adopted on the same day, together in their families!  It was very special.  





Playing jacks with my other cuties!


I love the tenderness between A and Luke.  She must have said 10 times we were there "I love you Luke!"  


Monday, July 16, 2012

Why I LOVE Disneyland....


In a few days our family will visit "The Happiest Place on Earth" courtesy of a Jet Blue Vacation Package. I always feel so giddy about getting to visit no matter how many times I have been there. The kids are "over the moon" excited to go. I think the anticipation is one of the best parts. Talking over dinner and sharing about our favorite rides, treats and places to eat is a fun way to look forward to the "adventure". They are especially excited to see Aunt Katie and Uncle D's dog Kehei! This is a MUST do this trip!

I also think it reminds me of growing up, of the protection of my family and how happy our childhood was. Disneyland also reminds me of my dad. Sometimes just standing in spot where he once stood, gives me a peace and allows me to feel close.

So in honor of our upcoming trip...I wanted to *re post* one of my favorite blog posts about Disneyland (with updated pictures).


For me Disneyland will never lose it sense of awe and wonder. It will always evoke deep emotion when driving down Harbor Blvd., where the huge Disneyland Sign use to be for the first time of a trip. I will never lose the urge to jump up and down when I am eagerly awaiting my first entrance into the park.
It is forever a "magical world" that is apart of the make-up of who I am. When I go to Disneyland, it is like going home to some extent. I can remember my earliest of trips made to Walt's Kingdom in the great "green van". Us cousins (and parents of course) would get up early and drive from my grandparents home in Lancaster, California. I recall all the sprinkled donuts and tiny boxes of milk with striped straws (except for Ryan who did not like milk. It was juice for him) that would magically appear an hour or so into the trip. The moms would have us start looking for the top of Matterhorn Mountain long before I am certain it should have been there, in an attempt to control the mass kayos in the last two rows of the van. We would spend the day riding the attractions and of course eating. You think my favorite restaurant would be the Blue Bayou, but for me it will always be the "Mexican Place." We would eat our tacos and beans and rice, while watching train after train make the turn back into the station. Then of course we would always ride it after eating our meal.
Based on the year, I can recall the way in which we "attacked" the park. First.... Star Tours was the "it" ride. We would wait for hours to ride the simulator attraction. This was the best because growing up each of us cousins had our assigned "Star Wars Role". I, of course, being the oldest was Princess Leia. My cousin Bobby was always Luke Skywalker and David was Darth Vader, no surprise there. Although he always said he was "Dark Vader". I have to admit, it wasn't until Phantom Menace came out that I realized all those years it was "Darth" and not "Dark". He he. My cousin Sarah being another girl, I had to make up a role for her because there weren't any cool girl characters. So I assigned her the role of "Princess Leia's little sister." In my recollection Ryan's role would change from time to time. He might be Chewbacca one day and Han Solo the next. Ryan loved to build things and was very logical. I think he enjoyed his trucks and trains more than our silly pretend games. Oh the good ole days.(Grace on Pirates...Daddy on one side, Uncle D on the other)


Then... when Splash Mountain debuted, it was all about the log flume ride. That put Star Tours on the back burner because then we were on the other side of the park. I will never, ever, ever, forget RUNNING to Splash Mountain the first trip we made when it was open. I couldn't believe we were running through Disneyland, but what was even more amazing was that we loaded nine people (yes NINE people) into one log.

OK, to tell the story correctly, we have to back up to before we actually entered the ride. My POOR brother. He wasn't so brave back in the day. He did NOT want to go on the ride. Truth be told he was horrified. So... we had just huffed it on over from the entrance of the park to Critter Country, and were almost to the boarding area. Poor David was deathly afraid. He started clinging onto every rung of the side rails that led the line to the log. My dad was pulling him off one rail and he would immediately lock onto the next. I am sure CPS would not have approved. And it wasn't that he was just clinging on for dear life, he was screaming in high pitched shrill sounding cries! The cast members must of felt sorry for David and offered to watch him while the family rode. NOPE. David was riding and gosh darn it, he was going to like it. I am sure my dad made some statement, and then bribed him to go on the ride. As I recall my brother made $20 dollars when my dad decided it was time for David to experience an upside down roller coaster. (That is another story). Anyway back to the NINE of us in the log. We sat... Sarah, Ryan, Me, Bobby, David, My dad, My mom, Aunt Mary, Uncle Bobby. The log barley floated. I took on most of the water since Sarah ducked under the log and Ryan was so little. It was great. (I just want to take a moment to mention Disney doesn't allow running through the park anymore, and the logs have been updated so that 9 people, not matter how small, are never allowed). Again, the good ole days.


When I think of Disneyland I also think of my dad. It was the last place he took me on vacation. In the early years of our marriage, Mark worked so much and for weeks at a time. So in spring 2000, a year before they opened California Adventure, the four of us (dad, mom, David and myself) went on a cruise and stopped at Disney for a couple of days. We climbed up the ladders to look at the construction of the new California Adventure. My dad was very excited to visit the new park, but he never made it. I did show him pictures of our trip in 2001. I have a picture of my dad and I sitting by each other at the Mexican restaurant. And a sweet picture of my mom and dad on the Tea Cups with Matterhorn Mountain in the background. My dad and I would love to ride Thunder Mountain and Space Mountain. WE loved those rides. He loved the Haunted Mansion because at one point the "doom buggy" you are riding will turns backward and drops you. He always said it popped his back. Then for weeks after going to Disneyland he would talk in his version of "Pirate Talk". He would do it out of the blue and it would be so off the wall! We would all laugh not because it made and sense, but because he was hilarious. I WISH my dad could see Disneyland today. I WISH we could of had one last trip. I WISH he could have pushed our stroller (I know how much he hated being ran over by them). I mostly WISH for his company while being there. I WISH him to know his grand kids. To see the joy on their faces as they "find a love" for the Happiest Place on Earth. So many WISHES...



Disneyland is woven into my makeup. My parents believed in Disney (as did my whole family). It means so much more than just an overpriced theme park. I have been to Disneyland with of course my family, my youth group, youth pastors, concert choir, my husband and now my children. It is my childhood, my memories and my dreams. My dream is that my children would realize the MAGIC that Disneyland unlocks every time you set foot inside. So maybe I am a little crazy to not be able to tell you how many times I have been ( I know at least 30 times). For me....EVERY visit holds the magic of my very first trip.

(Family...that is what it is ALL about!)
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